My friend starts treatment tomorrow - anal cancer

Hello everyone,

Kelly and I have known each other for about 11 years, and have always called each other "BFF" even though it sounds silly coming from 58 year-old women.  Our birthdays are only 3 weeks apart.  In April she was diagnosed with Squamous Cell Carcinoma of the anus.  Tomorrow she starts her treatment which is mytomycin on Day 1 and 28 with Capecitabine orally twice a day M-F, plus radiation M-F.

My husband and I each had our own cancer oddyseys in 2012 and 2013.  I'm a person who likes to know everything about anything I'm taking on.  So I am doing my research about anal cancer so I can support Kelly in any and every way possible.  We are in British Columbia, Canada and the BC Cancer Agency is pretty good, but there is still so much they don't tell you, so it is my mission to fill in the blanks by reading and talking to survivors.  

Thank you for welcoming me into this network.

Lily

 

 

 

 

 

 

 

 

 

 

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Nathan, Jeanie threw a punch at your cancer.
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Welcome Lily. I am so sorry that your BFF has to go through this. You have come to the right place. I am only 4 months post treatment, but there are many members here who are 5 and 10 years plus and they have lots of good info and advice. It is a very supportive network with some amazingly strong and encouraging people. You and Kelly are in my thoughts.
Lily likes this comment
Hi Lily. I am so sorry for Kelly's diagnosis. I hope her treatment will go smoothly and with a good outcome. If you have any questions, please feel free to ask. Hugs!
Lily likes this comment
She is so blessed to have you as her friend. We are all here for you both❤️
Lily likes this comment
Welcome to the blog...it sounds like your BFF means a great deal to you and she will deeply appreciate your support ❤️ and research! This blog was a saving grace for me during treatment and continues to be a major source of comfort an information to me 2 plus years out.
Lily likes this comment
Hi Lilly,
Welcome! I am in Washington, so, not far away, but a whole different health system.
We have cancerlifeline.org with lots classes, but even in that setting, it's hard to talk about that specific cancer. I have pushed for them to do a women's pelvic cancer, but it may still take awhile.
This is a great place to get questions answered and talk about things off limits to other audience.
Feel free to ask any questions.
We are here for you.
Hugs
Lily likes this comment
Hi Lily. You are most welcome and God bless you for wanting to learn about this disease in an effort to help your friend, Kelly. I'm sorry that she has gotten this diagnosis. I am a 10-year survivor, soon to be 11, and I have gotten so much support from this group, so I'm glad you've found us!

If you want to learn as much about this disease as you can, please check out the following websites.

http://www.analcancerhelp.info/
This is a website developed by our BFAC friend, Helen--lots of great info!

https://www.analcancerfoundation.org/?geoip=US
This is the website for The Anal Cancer Foundation

https://www.nccn.org/
You will need to register on this site, but it will give you access to the latest treatment guidelines for anal cancer and lots of other good information.

The good news about anal cancer is that it is very treatable with good outcomes, especially in early stage. Many of us here are proof of that! Treatment is a short course, but can be difficult, so if you have questions, need advice or information to help your Kelly manage side effects, etc., the great group of folks here will help you--just ask! There's a wealth of knowledge here, based on personal experience.

I wish Kelly all the best and again, God bless you for being a great friend to her, especially during this challenging time.

Lily, Janice like this comment
Sorry to be late coming to welcome you but you will find the best support possible here. Please keep us posted.

I have a website for anal cancer that may be of interest: www.analcancerhelp.info....hope there is something there that can help the two of you.
Janice likes this comment
Hi Helen! I have perused your website and it is very helpful. I printed the "Tips from a nurse" and gave it to Kelly. Thank you! Lily
Oh, so glad to read that!
What a wonderful thing to be doing for your friend. This is the best place to learn. Ask questions. Check the files. Read the blogs. I don't know where I'd be without the information and support I got here. So many things I would not have otherwise known. By asking questions, I made different choices then I would have without those answers.
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Vital Info

Posts

May 30, 2019

Canada

Cancer Info

Anal Cancer

Squamous Cell Carcinoma

April, 2019

Stage 3

Stats

Posts: 2
Photos: 0
Events: 0
Supporters: 26
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